Wednesday, March 11, 2015

The best laid plans...traveling with a disability.

So my MS has reared its ugly head.  No, I am not having a relapse, but some ongoing symptoms have set me back a bit.

As some of you know, I have a difficult time with my legs spasming at night.  It's not like restless leg syndrome, but more of a whole leg contraction every 29 seconds.  Yes, Steve used to time them.  I take antispasmodic medication twice a day, but sometimes that is not enough.  Through the diet I have been following I have identified foods that make my spasming worse, like gluten. But now other foods are triggering spasming at night, and when it starts it is very difficult to stop.  I have a bag of tricks, but for two nights (Mon & Tues) I got no sleep they were so bad.

Fatigue is an ongoing problem for people with MS and two all-nighters in a row is not good.  I try to nap, but I can't very effectively.  All that laying down does a number on my back, which is another of my ongoing problems.  While I slept last night, this morning my body is all in painful knots.  The way I loosen up when my body is all tight and inflamed is to swim.

This campground in Saint Augustine does not have a pool.  I hurt too much to sit on a hard trolley seat as was the plan today in St A. so I proposed something radical (for us) to Steve.  Why don't we put St A on hold for this year and proceed up to Jacksonville (Pecan Park) today where we already have reservations for the weekend.  He called and added two more days onto our stay there.  And they have a pool!  They also have full hook-ups, a fitness room, cable and free wifi (we have stayed there before).

They are a Passport America park but the discount is only for one night, but then they are a Good Sams park so we will get 10% off.

I think what we have learned from this is that we need to camp where there is a pool to keep my body functioning.  Who knows what we will find as we travel north but at least for now I will have five days to swim and loosen up.

I have also learned that I am not that thrilled with the weather in Florida in March...when it's warm it's too hot, and before a rainy spell comes through it's too humid.  I think I like February here better.

4 comments:

Karen and Tony said...

I'm sorry that you're having health problems but fortunately one of the best things about RVing is that it allows you to change plan fairly easily. St Augustine will still be there, waiting for your next visit!

Enjoy your stay in Jacksonville!

Camping with Robin and Steve said...

Thanks guys! Just got back from a long swim in the pool!

Anonymous said...

Bummer! But glad you had gears to shift and plans to change. Stay until you feel OK.
Will call tomorrow about todays visit -- not enthusiastic... Probably will go check out the one in Virginia.
Take care,
Gram

Camping with Robin and Steve said...

Ok, we will talk tomorrow!